Experience of family function, family involvement, and self-management in adult patients with type 2 diabetes: A thematic analysis

Birgitte Bøcher Bennich, Lene Munch, Dorthe Overgaard, Hanne Konradsen, Filip Krag Knop, Michael Einer Røder, Tina Vilsbøll, Ingrid Egerod

Publikation: Bidrag til tidsskriftTidsskriftsartikelForskningpeer review

Abstract

Aim
To describe the patient's experience of family function and its importance in diabetes‐related self‐management.

Background
Many patients fail to reach the targeted glycemic level due to low self‐management adherence. Knowledge is needed regarding the impact of family function on diabetes self‐management.

Design
A qualitative descriptive design.

Methods
A purposive sample of 20 patients with type 2 diabetes. Data were collected in March‐June 2017 via audio‐recorded semi‐structured interviews, field notes and Eco‐maps. Analysed using thematic framework matrix and thematic analysis.

Results
Four themes were identified: (1) Downplaying disease. The disease was trivialized creating a barrier to family involvement; (2) Second guessing. When diabetes was not discussed, patient and family made their own assumptions; (3) Going it alone. The participants preferred sole disease responsibility to maintain usual family life; (4) No regrets. The participants managed their disease with medications only to maintain family cohesion and ‘the good life’.

Conclusion
The participants in our study downplayed the consequences of type 2 diabetes and chose to control their disease medically rather than by lifestyle changes. They renounced family involvement to maintain their lifestyle and promote family cohesion.

Impact
During clinical check‐ups, patients should be encouraged to involve their family in lifestyle changes. Healthcare professionals need to recognize illness‐ and treatment beliefs and the impact of family function in disease management.
OriginalsprogEngelsk
TidsskriftJournal of Advanced Nursing
Vol/bind76
Udgave nummer2
Sider (fra-til)621-631
Antal sider11
ISSN0309-2402
DOI
StatusUdgivet - 1 feb. 2020

Emneord

  • beliefs
  • diabetes type 2
  • family function
  • glycaemic control
  • HbA1c
  • lifestyle
  • nursing
  • patient
  • qualitative
  • self-management

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