Abstract
Introduction
Studies in young adulthood have identified difficulties for young adult women in particular, who struggle with a combination of long term poor glycaemic control, weight concern, misuse of insulin, late complications and psychosocial distress or depression. Research thus calls for interventions which are especially tailored to young adult women with poorly controlled Type 1 Diabetes (T1D), applicable by clinicians in practice and effective in promoting health and preventing complications. Susan, a 24-year-old woman, was one of 200 patients between 18 and 35 years old with type 1 diabetes who took part in a randomised controlled trial (RCT), testing the effectiveness in this age group of a flexible version of Guided Self-Determination (GSD) prior proven effective in adult care.
Purpose
To examine how an individual with complex chronic disease experience GEB. The case study should provide
insight into how the autonomy supportive intervention is experienced, from the person perspective.
Methods
A case study was conducted one year after Susan had finished the trial. Susan was interviewed by two external interviewers who were not involved in the intervention. The interview was thematically analysed according to a procedure suggested by Braun and Clarke. An overview of Susan’s diabetes management from onset until after the GSD intervention was made based on the interview and electronic patient record data on HbA1c, treatment and complication status. Finally, changes on psychometric scales, measured before and after the intervention, were included.
Implications for practice
We consider GSD applicable by HCPs in order to facilitate a process of change in young adults with a complex of poorly controlled T1D and psychosocial distress. Time is used more efficiently when patients work at home to clarify their difficulties. Shifting the focus from ‘numbers’ to the patients’ life with diabetes can increase attendance and release the potential for change.
Conclusion
Susan benefitted from this flexible intervention, breaking out of her isolation by focusing on what was personally important for her and going through an empowering process with improved HbA1c and psychosocial functioning.
Studies in young adulthood have identified difficulties for young adult women in particular, who struggle with a combination of long term poor glycaemic control, weight concern, misuse of insulin, late complications and psychosocial distress or depression. Research thus calls for interventions which are especially tailored to young adult women with poorly controlled Type 1 Diabetes (T1D), applicable by clinicians in practice and effective in promoting health and preventing complications. Susan, a 24-year-old woman, was one of 200 patients between 18 and 35 years old with type 1 diabetes who took part in a randomised controlled trial (RCT), testing the effectiveness in this age group of a flexible version of Guided Self-Determination (GSD) prior proven effective in adult care.
Purpose
To examine how an individual with complex chronic disease experience GEB. The case study should provide
insight into how the autonomy supportive intervention is experienced, from the person perspective.
Methods
A case study was conducted one year after Susan had finished the trial. Susan was interviewed by two external interviewers who were not involved in the intervention. The interview was thematically analysed according to a procedure suggested by Braun and Clarke. An overview of Susan’s diabetes management from onset until after the GSD intervention was made based on the interview and electronic patient record data on HbA1c, treatment and complication status. Finally, changes on psychometric scales, measured before and after the intervention, were included.
Implications for practice
We consider GSD applicable by HCPs in order to facilitate a process of change in young adults with a complex of poorly controlled T1D and psychosocial distress. Time is used more efficiently when patients work at home to clarify their difficulties. Shifting the focus from ‘numbers’ to the patients’ life with diabetes can increase attendance and release the potential for change.
Conclusion
Susan benefitted from this flexible intervention, breaking out of her isolation by focusing on what was personally important for her and going through an empowering process with improved HbA1c and psychosocial functioning.
| Translated title of the contribution | Fokus på liv fremfor tal.: Guidet Egen Beslutning (GEB). |
|---|---|
| Original language | English |
| Publication date | 15 Sept 2014 |
| Publication status | Published - 15 Sept 2014 |
| Event | Sygeplejefestival 2014 - Lokomotivværkstedet, København, Denmark Duration: 15 Sept 2014 → 15 Sept 2014 |
Conference
| Conference | Sygeplejefestival 2014 |
|---|---|
| Location | Lokomotivværkstedet |
| Country/Territory | Denmark |
| City | København |
| Period | 15/09/14 → 15/09/14 |